88 Discussion Providing accurate, up to date, comprehensive, and relevant (to the person seeking it) information and support services on MBC is challenging. Over time, patients move from diagnosis into a series of treatments until medicines and therapies no longer work. Over the course of their disease, information needs change, usually prompted by a change in treatment or life circumstances. Patients seek information about their disease subtype and their demographic. Caregivers have different information needs as well. This analysis found that Alliance advocate members provide high quality information and support services to MBC patients and their families. However, information provided by the Alliance members requires that patients have relatively high health literacy and be Internet savvy. Organizations must consider how to reach these people and other subgroups of the MBC patient population. Unfortunately, quantitative data on the demographics and numbers of people who are accessing the programs and services is not consistently collected. As a result, the profiles and needs of the patients who are and who are not accessing the information and support are unknown. While the disease-state websites of industry partners is comprehensive, the information is hard to find for patients not using the product/drug. There is a duplication of patient support tools across the websites such as treatment planners, discussion guides, accessing community groups. Similar to the advocate organizations, data are not collected on the patient using the websites. Without understanding who the user is and what types of information they seek and value, it is difficult to know how to make the sites more useful. The majority of nonprofits report that their programs and services are underutilized. This may be because people are not aware of the advocacy organizations and where to find information or are finding support in other places. Because members offer so much general information, it is difficult for individual patients to find what they need. Persistent gaps in information include detailed information on the latest treatments; monitoring of treatment, including for side effects and quality of life; palliation; and advanced directives and end-of-life care. Information on how people are diagnosed with MBC could be improved, and there is a dearth of information on new drugs in clinical research. MBC Alliance members recognize that there are a number of opportunities to use our collective resources to extend the quality and reach of our information and patient support services. A next step is to understand more clearly who is and who is not using the support services and tools, how the services are being used, and how they can be improved to better meet the needs of people living with MBC. Through a collaborative effort, we will work to offer better support to address MBC patients’ unique needs and empower them to be informed partners in their treatment decision making. “Thereisalack of ofinformation on newdrugs,current clinical research, advanced directives,end oflifecare,and monitoring treatment.” MBCA Landscape Analysis-web contentanalysis, PamelaMiller 2014. Notable end of life sources: Cancercare.org: Caregiving at the End of Life (2011) Susan G. Komen on Advanced Directives ww5.komen.org/ uploadedFiles/ Content_Binaries/ 806-03161.pdf