13 MBC Patient Information and Support Services Alliance members, and others, need to improve consistency of information about MBC across agencies; better quantify the numbers of people living with MBC they are serving; understand what services are most often accessed; and expand reach into all communities regardless of socioeconomic status, gender, race, culture or geography. • Quantitative data on the demographics and numbers of MBC patients accessing programs and services are not consistently collected. As a result, it is not known how patients use the tools, how the programs and services can be optimized, and which patients are not being reached. • The majority of organizations report that their programs and services are underutilized, surmising that patients don’t know about them, do not consider the programs to be suited to their needs, or are seeking information and support in other places. • Many Alliance members provide high-quality information and support services to MBC patients and their families. However, the information provided requires that patients have relatively high health literacy and be Internet savvy. Organizations must consider how to reach other subgroups of the MBC patient population. Because Alliance members offer so much general information, it is difficult for individual patients to find what they need. • Persistent gaps in MBC information on members’ sites and in print include detailed information on the latest treatments; monitoring of treatment, including for side effects and quality of life; palliation; and advanced directives and end-of-life care. Information on how MBC is diagnosed could be improved, and there is a dearth of information on new drugs in clinical research. • Alliance member websites do not address MBC facts sufficiently to inform the MBC patient populations or even caregivers and early stage breast cancer patients. More content and community can be created by enhancing current information, using a modern design, and adding tools for social networking. Informationand supportarenot distinctfromone another. MBC patients find informationtobe supportiveand seek informationfromtheir supportsystems; thus, servicesforMBC patientsshouldrefer toboth. Nearly half of MBC patients surveyed say they find the information they need difficult to locate and confusing, and that what they do find doesn’t fully address their needs.