Search Member Programs & Resources

Do you live with MBC, or care for someone who does? Try our search hub to find resources from our coalition of leading cancer organizations. From counseling to financial support, find offerings that fit your unique needs.
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Tigerlily Foundation
Education & Awareness Policy

#InclusionPledge

The #InclusionPledge provides a transparent and tangible framework across stakeholders to identify and track equity actions, holding organizations accountable to making specific, measurable outcomes that will result in dismantling systemic barriers and co-creating solutions that will result in health equity for Black women and end disparities in our lifetime.

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Tigerlily Foundation
Education & Awareness Online Support Support & Counseling

#KnowMoreDisparities and #PullUpASeat

#KnowMoreDisparities and #PullUpASeat are monthly conversations that shine a light on the experiences of Black women with breast cancer. Our mission is to leave each participant with tools that provide a tangible way to end a barrier for patients of color; as well as to educate allies community and provide them with a deeper understanding of how to support, engage and collaborate with patients.

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Metastatic Breast Cancer Network
Education & Awareness Resources & Information

31 FACTS ABOUT MBC YOU CAN SHARE WITH OTHERS IN OCTOBER & ALL YEAR

There are 31 facts about metastatic breast cancer that patient advocates can during the month of October or all year.

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American Cancer Society Cancer Action Network
Education & Awareness Training

ACS CAN Volunteer Advocate

You have the passion to help end suffering and death from cancer. We have the tools and camaraderie to help make you wildly successful. ACS CAN has volunteer action teams in over 400 communities across the nation. Just tell us how you want to help, and we can find a fun and impactful role for you to fill right there at home, in your own community.

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Tigerlily Foundation
Education & Awareness Training

ANGEL Advocacy

We are committed to mobilizing our community of young women, caregivers, and loved ones to transform lives and recognize that we must Advocate Now to Grow, Empower & Lead through the ANGEL Advocacy Program that provides comprehensive training for women of color between the ages of 21 and 50, who have been impacted by breast cancer – either by their own diagnosis or through a loved one.

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Patient-Led Initiative
Clinical Trials

ASCO’s Clinical Trials Access and Participation Task Force

The ASCO Clinical Trials Access and Participation Task Force studies optimal dosing and alternate dosing strategies for treatments for patients with MBC. As a member of PCDI (Patient Centered Dosing Initiative), this research seeks to discover optimal dosing for patients, to help determine efficacy with fewer treatment-related side effects, and to improve quality of life for patients.

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MacroGenics
Financial Resources

Access Support

For eligible patients who were prescribed a treatment using a product from MacroGenics, financial support may be available to help them with affordability issues.

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Angelmira's Center for Women with Advanced Cancer
In-Person Support Integrative Oncology Online Support

Activities to Enhance Quality of Life

We promote activities and help women identify ways that may help improve their mental, physical and emotional well-being so they feel better and remain engaged as they battle with advanced cancer

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Research Advocacy Network
Education & Awareness Research Training

Advocate Institute

The Research Advocacy Network’s Advocate Institute is designed to equip advocates with an understanding of the medical research system, scientific concepts and safeguards for research participants. We develop the tools and resources needed to comprehend research studies and communicate effectively with patients, researchers and other advocates.

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Patient-Led Initiative
Education & Awareness Training

Alamo Advocate Program

Every December since 1997, the Alamo Breast Cancer Foundation (ABCF) has run a patient advocate eduction program in parallel withthe San Antonio Breast Cancer Symposium (SABCS). The purpose of the program is to facilitate better understanding of the SABCS proceedings by the breast cancer patient advocates attending the conference.

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Patient-Led Initiative
Research

Antibacterial Research Leadership Group (ARLG)

ARLG has over 100 leading experts working together to combat the antibacterial resistance crisis and improve patient care. We accomplish this goal through a scientific agenda that prioritizes areas of unmet needs, innovates clinical trial design, and informs practice-changing guidelines.

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Chrysalis Initiative
Education & Awareness Support & Counseling

BC Navi App

BC Navi (Breast Cancer Navigation) is closing the healthcare gap for Black women by providing the necessary tools to recognize and address racism in the healthcare industry. Using these resources, we can work together to hold healthcare providers accountable and make sure every patient receives the care they deserve.

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ABCD: After Breast Cancer Diagnosis
Education & Awareness Training

BECOME A MENTOR

Mentors are volunteers who are breast cancer survivors, living with MBC, a friend or family member of a breast cancer patient or have been a caregiver to a breast cancer patient.

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MBC Alliance
Clinical Trials Education & Awareness

BECOME

The BECOME (Black Experience of Clinical Trials & Opportunities for Meaningful Engagement) Research Project aims to better represent Blacks and other minorities in cancer research by increasing diversity in access to clinical trials for MBC.

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Living Beyond Breast Cancer
Helpline Support & Counseling

BREAST CANCER HELPLINE

Coping with metastatic breast cancer doesn’t have to happen alone. When you reach out to the Breast Cancer Helpline, you will be matched with a trained volunteer who has similar experience to you for emotional support, guidance, and hope. Call today: 888-753-5222 or request a match online.

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Infinite Strength
Financial Resources

Basic Human Needs

Monthly recurring financial assistance to underserved single mothers with MBC for expenses like rent/mortgage, utilities, groceries, etc.

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FORCE: Facing Our Risk of Cancer Empowered
Conferences & Workshops Education & Awareness

Be Empowered Webinars

Our webinars are online presentations by experts on topics of importance to our community.

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Sharsheret
Financial Resources Integrative Oncology Support & Counseling

Best Face Forward 2.0

Best Face Forward 2.0 can provide financial subsidies based on an eligibility criteria. One could be eligible for financial subsidies for wigs (cranial hair prosthesis), cold caps (scalp cooling treatment), and tattooing (three-dimensional micro pigmentation of the nipple and areola), tattooing of the eyebrows (micro blading), and yoga (where applicable).

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AstraZeneca
Education & Awareness Resources & Information

Beyond Pink: Sharing Our Metastatic Breast Cancer Story

We know that navigating a metastatic breast cancer (MBC), diagnosis isn't easy, but with proper knowledge, tips, and support, you can be well equipped to face the challenges of MBC. That’s why Beyond Pink was created—to provide useful tools and information specifically for women with MBC and their loved ones as they face this unique journey together.

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Twisted Pink
Education & Awareness Resources & Information Support & Counseling

Box of Hope Program

The United Breast Cancer Foundation has generously donated the gifts for the Hope Box program. The boxes are filled with health and beauty items—clothing, jewelry, herbal tea, and more—for survivors and patients to enjoy following what are often expensive treatments for breast cancer. The retail value of the box is approximately $500 per recipient.

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Patient-Led Initiative
Clinical Trials Education & Awareness

Breast Cancer Brain Metastasis Initiative: The Marina Kaplan Project

BCBM Initiative: The Marina Kaplan Project aims to accelerate urgently-needed research on breast cancer brain metastasis through advocating for increased funding, collaborating with leading researchers, and influencing key stakeholders.

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MBC Alliance
Education & Awareness Resources & Information

Breast Cancer Brain Metastasis Initiative: The Marina Kaplan Project

BCBM Initiative: The Marina Kaplan Project aims to accelerate urgently-needed research on breast cancer brain metastasis through advocating for increased funding, collaborating with leading researchers, and influencing key stakeholders.

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CancerCare
Education & Awareness

Breast Cancer Resources

CancerCare provides free, professional support services for people affected by breast cancer, as well as breast cancer information and additional resources.

We also offer a Women’s Cancers Program to help support female-identifying individuals coping with cancer.

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Susan G. Komen
Helpline Support & Counseling

Breast Care Helpline

The Breast Care Helpline offers support provided by trained specialists and oncology social workers to support those navigating our complex health care system in both English and Spanish, including emotional support, referrals to resources, and information on clinical trials.

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Metastatic Breast Cancer Network
Clinical Trials Education & Awareness Resources & Information

CLINICAL TRIAL FINDER

Use the clinical trial search tool to find a potential trial that matches your subtype of metastatic disease and sites of progression. Consider sharing the trial with your healthcare provider.

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Metastatic Breast Cancer Network
Clinical Trials Education & Awareness Resources & Information

CLINICAL TRIALS

Learn why clinical trials and patient participation is so important to new treatments being available when patients experience a progression.

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Cancer Support Community
Registry Research

Cancer Experience Registry: Metastatic Breast Cancer

The Registry provides an opportunity to give back to the cancer community. The survey covers many topics including emotional wellbeing, cost of care, and cancer diagnosis and treatment. The data you provide informs Cancer Support Community services and programming to benefit the greater cancer and caregiver communities.

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Triage Cancer
Financial Resources

Cancer Finances

CancerFinances.org is a toolkit that provides practical information on topics that can impact your finances. It is designed to guide you to the information that is most relevant to your situation and connect you to financial assistance resources.

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Patient-Led Initiative
Education & Awareness

Cancer In The Know

At Cancer In The Know, it is our mission to build community and provide empowerment with trusted education and valuable information. Our specific focus is on breast cancer and the impact in the Black/African American community. Here we will share the latest information and resources such as conferences, educational webinars, and advocacy opportunities.

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CancerCare
Education & Awareness Podcasts

Cancer Out Loud: The CancerCare Podcast

Cancer Out Loud: The CancerCare Podcast features conversations with people living with cancer, caregivers, survivors, loved ones and the bereaved. Wherever you are in your experience, CancerCare is here to provide help and hope.

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Triage Cancer
Caregivers Education & Awareness Resources & Information

Cancer Rights Guides

"Cancer Rights" is a guide to the legal and practical issues that may affect individuals who are diagnosed with cancer, their caregivers, and the professionals who treat them. This guide is meant to serve as an introduction to some of the cancer rights law topics that most people have to deal with in some way after a cancer diagnosis: employment, insurance, and finances.

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Cancer Support Community
Helpline Support & Counseling

Cancer Support Helpline

Call our Cancer Support Helpline at 888-793-9355 to get help coping with cancer in 200+ languages. We can connect you to resources like support groups, transportation & more - treatment decision planning, navigating cancer costs, and specialized info on finances, clinical trials, and genetics/genomics.

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Susan G. Komen
Clinical Trials Education & Awareness

Clinical Trial Education Initiative

Clinical trials are key to making progress against breast cancer. People who join clinical trials receive high-quality care, and at the same time are contributing to research that could help themselves or others. Komen wants to help people with breast cancer find—and participate in—clinical trials, including trials supported by Komen.

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SHARE Cancer Support
Clinical Trials Education & Awareness

Clinical Trial Matching Service

SHARE has teamed up with EmergingMed to offer breast cancer patients a free, confidential, personalized Clinical Trial Matching service. You can customize your searches based on a range of criteria that includes the specific breast cancer type, stage, treatment history and place where you can enroll. Clinical Trial Specialists are available to guide you through your confidential search.

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Triage Cancer
Clinical Trials Education & Awareness

Clinical Trials Education

A clinical trial is a research study that “prospectively assigns human participants or groups of humans to one or more health-related interventions to evaluate the effects on health outcomes.” Practically speaking, they are research studies that find and test new treatments or procedures. Without clinical trials, we would not have the medical and scientific advances that we have today.

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Cancer Support Community
Clinical Trials Education & Awareness

Clinical Trials Education

In 2015, the Cancer Support Community began an initiative to bring fresh ideas, new language, and new approaches to increasing participation in cancer clinical trials. We aim to provide a range of resources that speak to a diverse population of cancer patients, caregivers, and their healthcare team in a changing environment.

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Breastcancer.org
Clinical Trials Education & Awareness

Clinical Trials Education

Clinical trials are carefully designed research studies that depend on human volunteers to improve medical care over time, and virtually every treatment we have today for cancer (and other diseases) was first tested in clinical trials — which is why it's so important for people to participate.

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Young Survival Coalition
Clinical Trials Education & Awareness

Clinical Trials for MBC

Clinical trials are controlled, scientific studies that test the safety and effectiveness of specific therapeutic interventions. If offered, understand the purpose and design of a trial, what it is required of you and what your rights are. Our Metastatic Navigator has more information.

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Susan G. Komen
Clinical Trials Education & Awareness

Clinical Trials for People with Metastatic Breast Cancer

Learn about clinical trials for people with metastatic breast cancer.

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Lilly Oncology
Clinical Trials Education & Awareness

Clinical Trials

Why participate in a clinical trial? Finding new and improved medicines is possible only through the help of people like you. Every clinical trial participant provides valuable information that might help improve medical research and knowledge.

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Tigerlily Foundation
Clinical Trials Education & Awareness

Clinical Trials

Tigerlily Foundation’s Clinical Trials Program is a transformational initiative to accelerate the delivery of innovative treatments to our patients, with a strategic focus on populations that are facing the highest disparities.

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CancerCare
Conferences & Workshops Education & Awareness

Community Programs

CancerCare's Community Programs offer a variety of opportunities to connect with others affected by cancer and to learn strategies to better cope with a cancer diagnosis or the diagnosis of a loved one.

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CancerCare
Education & Awareness

Connect Education Workshops

Leading experts in oncology provide up-to-date information in one-hour educational cancer workshops over the telephone or online. We also offer publications about cancer-related topics.

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Patient-Led Initiative
Research

DFCI Breast Cancer NCI SPORE Grant Review Committee

One of four Patient Research Advocates on the DFCI NCI SPORE Grants Review Committee who read the scientific applications of researchers applying for grants each year. Scoring is done along with each team of clinician and lab researcher, hopefully giving a cohesive view of all.

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DAIICHI SANKYO
Financial Resources Resources & Information

DSI Access Central

At Daiichi Sankyo, Inc., those in need of treatment are always our top priority. We are committed to helping you get your medications by providing a wide array of patient support to help with access to our treatments.
Access Central is a single source for support. Get the answers you need about accessing medication and starting and staying on treatment.

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Patient-Led Initiative
Education & Awareness

Deep South Witness Project

The high breast cancer mortality rate among African American women in the US is due, in part, to low rates of screening. The Deep South Witness Project is an innovative breast cancer education program designed for African American women living in Mississippi and Alabama to obtain age-appropriate breast cancer screenings and follow-up, potentially reducing late-stage diagnosis and mortality.

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Patient-Led Initiative
Research

Developing a human-centered information toolkit for trastuzumab biosimilar uptake

This research project follows patient and clinician surveys that sought to understand the communication gaps and needs around medication changes involving trastuzumab and its biosimilars.

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Research Advocacy Network
Education & Awareness Resources & Information

Downloadable PDF Resources

Research Advocacy Network offers numerous publications and tutorial resources to advocates at no cost. Many are available for immediate download as PDFs.

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ABCD: After Breast Cancer Diagnosis
Support & Counseling

EMOTIONAL SUPPORT

ABCD offers free, customized, one-to-one emotional support to anyone impacted by breast cancer. Metastatic breast cancer patients will be matched with a trained Mentor who is also metastatic who shares a similar treatment plan, age, hobbies, profession, and more.

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Breast Cancer Research Foundation
Funding Research

EVELYN H. LAUDER FOUNDER'S FUND FOR METASTATIC BREAST CANCER RESEARCH

BCRF is the largest private funder of MBC research in the world and currently dedicates 40% of its total investment to this area of study through its flagship Evelyn H. Lauder Founder’s Fund for MBC Research. Founder’s Fund-supported studies led to an experimental model system that precisely mimics human breast metastases as well as an open-access online database of metastases models.

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Lobular Breast Cancer Alliance
Education & Awareness Resources & Information

Educating Others About Lobular Breast Cancer

Information on invasive lobular carcinoma (ILC), including metastatic ILC, can be hard to find in traditional breast cancer institutions and organizations. You can educate others about ILC and raise awareness in your local cancer community by working with the Lobular Breast Cancer Alliance.

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Patient Advocate Foundation
Education & Awareness Resources & Information

Education Resource Library

The Education Resource Library provides straightforward information in a variety of formats to help you make informed decisions throughout your healthcare journey. Learn about health insurance, disability, appealing a health insurance denial, medical bill management, and more!

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Sharsheret
Education & Awareness Online Support Social Media Support & Counseling

Embrace

The Sharsheret Embrace Community is a supportive Facebook group which allows women to connect with peers experiencing a similar journey with advanced cancer.

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Angelmira's Center for Women with Advanced Cancer
Helpline Resources & Information Support & Counseling

End of Life Resources

We help women with advanced cancer when standard of care therapies have failed by providing resources available for this stage of their journey, educating them about their options, legal documents required and providing companionship as needed.

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Living Beyond Breast Cancer
Education & Awareness Newly Diagnosed Social Media

FACEBOOK COMMUNITY: Breast Cancer Support for All Ages, All Stages

Join one or both of our two private Facebook groups to connect with other people diagnosed with breast cancer across the country, share resources and receive peer support.
Breast Cancer Support for All Ages, All Stages

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Living Beyond Breast Cancer
Education & Awareness Newly Diagnosed Social Media

FACEBOOK COMMUNITY: Breast Cancer Support for Young Women: All Stages Welcome

Join one or both of our two private Facebook groups to connect with other people diagnosed with breast cancer across the country, share resources and receive peer support.
Breast Cancer Support for Young Women: All Stages Welcome

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CancerCare
Financial Resources

Financial Assistance

CancerCare offers limited direct financial assistance to individuals living with cancer. Eligibility is additionally based on location, diagnosis and income level. Expenses include transportation, home care, child care and more. Information changes frequently; we invite you to call our Hopeline for the most accurate and up-to-date information on financial assistance.

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Susan G. Komen
Financial Resources

Financial Support

Komen's Financial Assistance Program provides financial assistance to patients currently in treatment for expenses such as housing, transportation, food, medications, and more.

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Pfizer
Education & Awareness Resources & Information

Find Your MBC Voice

Pfizer, along with members of the mBC community, developed Find Your MBC Voice to offer resources to help people diagnosed with mBC find their voices and feel empowered to have an informed conversation with their doctor about their treatment options. Those living with mBC and their loved ones can visit FindYourMBCVoice.com for resources, including an interactive discussion guide.

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Cancer Support Community
Education & Awareness In-Person Support Resources & Information Support & Counseling

Find a local Cancer Support Community or Gilda's Club

There are 175 Cancer Support Community & Gilda’s Club locations worldwide. We offer professionally-led programs such as support groups, yoga classes, & educational workshops at no cost. There is something for every age group & life situation, including children, teen, & families affected by cancer.

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Cancer Support Community
Education & Awareness Resources & Information

Frankly Speaking About Cancer: Metastatic Breast Cancer

Learn how to cope! Frankly Speaking About Cancer: Metastatic Breast Cancer helps patients and their loved ones navigate MBC, learn about treatment options, manage symptoms and side effects, and cope while living with MBC. Become an active member of your health care team and advocate for yourself.

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Patient-Led Initiative
Conferences & Workshops Education & Awareness Resources & Information

GRASP - Guiding Researchers & Advocates to Scientific Partnerships

GRASP empowers empower patients and researchers to exchange ideas and learn from each other. When patient advocates can inform the research process, we can drive more meaningful and fundable research that improves survival outcomes for breast cancer patients.

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Know Your Lemons Foundation
Education & Awareness

Global Educator Program

We train volunteers through an online course to teach about breast health in their local community. Learn breast health basics, get teaching tools, and become part of a global community of over 800 trained “Lemonistas.”

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Living Beyond Breast Cancer
Education & Awareness Resources & Information Training

HEAR MY VOICE METASTATIC ADVOCACY PROGRAM

Hear My Voice Advocates are provided the tools and training to help people affected by metastatic breast cancer use their personal stories to raise awareness about the disease and advocate for others in their physical and digital communities.

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Metastatic Breast Cancer Network
Education & Awareness Resources & Information

HOW TO BE YOUR OWN BEST ADVOCATE

This initiative educates patients about the importance of knowing their subtype of MBC, finding the right healthcare provider, being sure you have received the right tests before a treatment is selected, and then participating in the decision to select a treatment. There are also suggestions from MBC patients about taking care of yourself and how to be sure you are getting the best care.

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SurvivingBreastCancer.org
Online Support

Healing Through The Arts

A cancer diagnosis can ignite our deepest fears, and while navigating this life-altering experience, we often lose touch with the present moment.

Through art, writing, and other creative modalities, we hold the power to manage our stress, make sense of our now, and relax into moments of stillness. Express yourself, get it out, connect with others, and find your breath again.

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MBC Alliance
Education & Awareness Social Media

Here All Year!

The Here All Year Campaign educates patients, stakeholders and allies on metastatic breast cancer by exploring a new topic each month. Visit our knowledge library and help spread the word not just during awareness month, but year-round

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Lilly Oncology
Education & Awareness Research Resources & Information

How Lilly is doing more to help

Lilly created the More for MBC initiative with the aim of increasing support for people living with MBC. We partnered with leaders in the MBC community to commission a national survey of patients, friends, family, and health care providers to better understand the daily challenges of living with MBC with a goal of addressing these challenges through education, research, and dedicated solutions.

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Metastatic Breast Cancer Network
Education & Awareness Newly Diagnosed Resources & Information

INFO FOR THE NEWLY DIAGNOSED

If you are recently diagnosed or know someone who is, this information is important to know as you begin your journey with metastatic breast cancer.

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Dr. Susan Love Foundation for Breast Cancer Research
Education & Awareness Resources & Information

ImPatient Science Videos

In October 2015, we launched ImPatient Science®, a series of educational videos designed to answer questions that patients frequently ask related to the biology of breast cancers, the body’s defense systems, and the pros and cons of treatment options. These videos are available in both English and Spanish.

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CancerCare
Support & Counseling

Individual Counseling

Our staff of professional oncology social workers provide individual and group support, practical information and resources to help you better cope with cancer.

Due to COVID-19, in-person services are being held virtually. If you are interested in face-to-face counseling, please call our Hopeline at 800-813-4673 to speak with an oncology social worker.

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Lobular Breast Cancer Alliance
Clinical Trials Education & Awareness Resources & Information

Information on Clinical Trials

Substantive research is needed to accelerate understanding of invasive lobular carcinoma (ILC), including metastatic ILC. This distinct breast cancer subtype represents about 15% of all breast cancers. Increased research could help improve detection, treatment, prevention of metastasis, and ultimately, develop a cure for people with ILC.

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Lobular Breast Cancer Alliance
Education & Awareness Social Media

Join Our Facebook Community

Join us and a community of women with lobular breast cancer online as we share the most current information about ILC detection, treatment and clinical trials, and raise awareness about this common yet understudied and sneaky breast cancer that needs more research.

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Lilly Oncology
Education & Awareness Social Media

Join the conversation

The More For MBC Facebook page aims to provide a supportive space and platform for people living with MBC, as well as advocates and families who are champions of doing more for MBC, to engage.

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FORCE: Facing Our Risk of Cancer Empowered
Conferences & Workshops Education & Awareness Resources & Information

Joining FORCEs Conference

The largest gathering of its kind, our conference attracts hereditary cancer survivors, individuals at high risk for cancer, those with a strong family history of cancer, researchers and medical professionals.

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Patient-Led Initiative
In-Person Support Wellness

Journey of Courage and Hope Retreats

Living with metastatic breast cancer can be challenging for both the patient and their support person. The Journey of Courage and Hope Retreat, presented by Saint Luke’s Hospital of Kansas City’s Koontz Center for Advanced Breast Cancer, is a chance for women and men with metastatic breast cancer to get away and experience healing and renewal.

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Living Beyond Breast Cancer
Conferences & Workshops Education & Awareness

LIVE VIRTUAL & IN-PERSON PROGRAMS

Throughout the year, LBBC offers live webinars and an annual Conference on Metastatic Breast Cancer that provide education from experts across the country, as well as the chance to connect to other people impacted by metastatic breast cancer.

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Triage Cancer
Financial Resources In-Person Support Support & Counseling

Legal & Financial Navigation Program

Triage Cancer provides patients, caregivers, and health care professionals with free one-on-one help in the areas of health insurance, disability insurance, employment, finances, medical decision-making, estate planning, and more. We are trained to help you find your way – or navigate – through the legal, financial, and practical barriers that you face as you access care.

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Infinite Strength
Education & Awareness In-Person Support Online Support

Life Support Panel Discussions

We assemble a team of leading oncologists, researchers, national advocates, therapists and social workers quarterly to discuss the challenges those living with this disease must face. These discussions are held in person but a virtual option is also available.

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Lilly Oncology
Financial Resources In-Person Support Support & Counseling

Lilly Oncology is committed to helping you receive the care you need

Through the Lilly Oncology Support Center, we strive to offer personalized treatment support for eligible patients in the US prescribed a Lilly Oncology product. For those who qualify, we can help with understanding insurance coverage and review of financial-assistance options, including savings card programs and independent patient-assistance foundations.

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Patient-Led Initiative
In-Person Support Support & Counseling

Little Pink Houses of Hope

Little Pink Houses of Hope empowers breast cancer patients and families to live each day to the fullest, with direction, purpose, and hope for the cancer journey. We accomplish this through free, week-long vacation retreats.

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Susan G. Komen
Conferences & Workshops Education & Awareness

Live Virtual Metastatic Breast Cancer Programs

The Komen MBC Impact Series provides free online seminars for people living with metastatic breast cancer and their loved ones, offering a safe, collaborative space to gather information related to MBC and discover practical resources to help make decisions for improved physical and emotional health.

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Patient-Led Initiative
Education & Awareness Policy Research

Living Beyond Breast Cancer Hear My Voice

Hear My Voice Advocates are trained to use their personal stories, statistics, and insights about metastatic breast cancer to increase awareness.

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National Coalition for Cancer Survivorship
Resources & Information

Living with Advanced & Metastatic Cancer Checklist

A checklist of questions to discuss with your care team for those living with advanced/metastatic cancer.

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Susan G. Komen
Education & Awareness Resources & Information

Living with Metastatic Breast Cancer

The About Breast Cancer section of komen.org provides a place for those living with metastatic breast cancer and those who love them to get comprehensive information that is safe, current, accurate, consistent, and evidence-based such as information for those newly diagnosed, recommended treatments, and managing side effects and more.

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Triple Negative Breast Cancer Foundation
Education & Awareness Resources & Information

Living with Metastatic Triple Negative Breast Cancer

Visit the Living with Metastatic Triple Negative Breast Cancer page of our website for information about treatments and resources.

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Lobular Breast Cancer Alliance
Education & Awareness Research Resources & Information

Lobular Breast Cancer Publications Library

The Lobular Breast Cancer Alliance (LBCA) has compiled a reference list of research publications related to lobular breast cancer. This includes studies of interest to those with metastatic ILC. People with metastatic ILC utilizing this publications library are encouraged to discuss all studies with their providers.

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Lobular Breast Cancer Alliance
Education & Awareness Resources & Information

Lobular Breast Cancer: An In-depth Look

LBCA's latest awareness raising efforts have resulted in a new movie! The presentation features patient advocates and LBCA Scientific Advisory Board members among others. It was created to help convey the issues with ILC, the importance of dedicated ILC research, and an overview of LBCA and its critical role in supporting the ILC community and in promoting collaboration, research, and advocacy.

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Dr. Susan Love Foundation for Breast Cancer Research
Education & Awareness Registry Research Webinars

Love Research Army

The Love Research Army is committed to encouraging and facilitating breast cancer research in all people, regardless of age, race, gender, sexual identity, with or without a breast cancer diagnosis. We combat the disparities that exist in research by challenging the scientific community to launch studies that are as inclusive and diverse as the people that breast cancer affects.

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MBC Alliance
Conferences & Workshops Education & Awareness Resources & Information Training

MBC Advocacy Slide Decks

The Metastatic Breast Cancer Advocacy Slide Decks Project is a series of generic slide decks that can be used by Alliance Patient/Advocates and others when they are asked to present at events to increase understanding of the disease, knowledge of the treatments for MBC, and the challenges faced by people living with the disease.

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MBC Alliance
Clinical Trials Registry

MBC Connect

This patient experience registry invites users to share info about their diagnosis and treatment history to help advance research for the MBC community. Participants can also get potential matches to clinical trials.

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Patient-Led Initiative
Wellness

MBC Creative Arts Therapy Retreat for Black Women and Men

A creative arts therapy 3-4 day retreat for Black women and men diagnosed with MBC in a beautiful retreat space in the Poconos. This retreat will uniquely address wholistically the dx of MBC in a manner that lends space for community, honesty, and vulnerability as well as transformation and healing in an environment outside of the white gaze. All facilitators will be individuals of color.

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Patient-Led Initiative
Conferences & Workshops Education & Awareness Resources & Information Webinars

MBC Forum Series

A series of educational events to support the education and emotional health of patients living with MBC.

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Patient-Led Initiative
Newly Diagnosed Wellness

MBC Kits

Creating MBC kits to be distributed to metastatic breast cancer patients in my area via the oncologist. I will follow up with the patients after receiving the kit to see if they have any specific needs that Cancer Services or Piedmont Triad METsters can help with.

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Twisted Pink
Conferences & Workshops Education & Awareness Resources & Information Training

MBC Symposium

The Metastatic Breast Cancer Symposium is offered at no cost for patients, caregivers, clinicians and researchers thanks to our sponsors. The Symposium will take place in Louisville, KY on June 9-10, 2022. You must register in advance to attend and 3 hours of CME is being offered.

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SurvivingBreastCancer.org
Education & Awareness Webinars

MBC Webinar Series

We livestream virtual webinars focusing on important topics specific to the MBC community. From patient experiences to asking the exports, our MBC Webinar Series provides education and resources to support those living with MBC.

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Patient-Led Initiative
Education & Awareness Support & Counseling

MBC and Me Three-Part Series

This series for MBC patients explores personal meaning of what survivorship means w MBC
Biomarkers, MBC and Me - Explores significance of biomarkers, genomics and more.
Misperceptions, MBC and Me - Focuses on common misperceptions, stereotypes of public and early detection campaign.
Reframing the Conversation, MBC and Me - Explores communication of goals of care, personal meaning of survivorship.

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SHARE Cancer Support
Education & Awareness Resources & Information

MBCBrainMets.org

As a one-stop resource hub for breast cancer patients living with brain metastasis, we are committed to sharing cutting-edge information and resources in a simple format. Curated by fellow patients and supported by nonprofit funding, our mission is to connect you to knowledge and support tailored specifically to your needs.

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Male Breast Cancer Global Alliance
Conferences & Workshops

MBCGA Annual Conference

The MBCG Annual Conference connects male survivors, their families, friends and supporters with medical professionals and organizations from all over the world who impart the latest information on research and clinical trials, and answer questions one-on-one. The conference, which focuses on increasing awareness and education about breast cancer in men, offers an impressive line-up of speakers.

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Patient-Led Initiative
Wellness

MBCmoves!

Utilizing dance/movement therapy and other expressive arts to highlight this complimentary therapy in a way that makes it accessible through blog, video and workshops.

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METAvivor Research and Support, Inc.
Support & Counseling Training

METAvivor Peer to Peer Support Group Leader Training

METAvivor offers Peer Led Support Group Leader Training and support groups throughout the US.

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METAvivor Research and Support, Inc.
Education & Awareness

METAvivor Sea to Sea for MBC

The Sea to Sea for MBC (#C2C4MBC) mets mobile travels around the US loaded with patient materials about MBC, Clinical Trials and advocacy. People living with MBC drive the RV from city to city and share their stories, providing peer contact and support.

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METAvivor Research and Support, Inc.
Education & Awareness

METAvivor Stage IV Stampede MBC Advocacy Program

Stage IV Stampede is a year-long program of advocacy for MBC which culminates with an event on Capitol Hill for those living with MBC, allies, friends and loved ones. The event includes State Ambassadors/Captains who work to inform their governmental representatives about MBC and the vital health protections needed for those living with the disease as well as needed research for the disease.

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Patient-Led Initiative
Education & Awareness Funding Research Resources & Information Social Media

METAvivor Virtual Sea to Sea for MBC

Covid has grounded the METAmobile, METAvivor's RV that was traveling the country to spread the word about MBC and visit past grant recipients for updates, so we are "zooming" instead of "vrooming"! Interviews with METAvivor funded investigators will be posted on our YouTube channel and shared via social media.

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Patient-Led Initiative
Funding Research

METAvivor

METAvivor exists to sustain hope for those living with stage 4 metastatic breast cancer (MBC). We are a volunteer-led, non-profit organization that funds vital research to help improve the longevity and quality of life for MBC patients. Passionately committed patients ourselves, we rally public attention to the urgent needs of the MBC community.

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Patient-Led Initiative
Conferences & Workshops Education & Awareness

Managing your Mind

"Managing your Mind: Advanced Breast Cancer (ABC) patient experiences of stress, anxiety & depression & how to build psychological resilience" was presented to ABC6's Virtual Conference in November 2021, highlighting the scale of the challenge ABC patients face in dealing with psychological & mental health, and that experiencing anxiety and stress is natural when living with ABC.

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Pink Fund
Financial Resources

Mary Herczog Fund for Metastatic Breast Cancer

If you are a stage IV metastatic patient/survivor and awaiting Social Security Disability, you may qualify under The Pink Fund’s guidelines for additional resources. You must meet all the criteria for this funding. Once you start receiving Social Security Disability you no longer qualify for The Mary Herczog Fund for Metastatic Breast Cancer.

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Breastcancer.org
Education & Awareness Resources & Information Social Media

Medical Information & Peer Support Community

We provide trusted, easy to understand, and actionable information and support to people with Metastatic Breast Cancer. People count on us for free access to the latest research news, tailored information, and connections to a supportive digital community of patients and caregivers.

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Genentech
Clinical Trials Education & Awareness Resources & Information

Medical information about a Genentech medicine or clinical trial

Seeking medical information about a Genentech medicine or clinical trial? We are dedicated to providing fair, up-to-date, and easy-to-understand information about our medicines.

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Nueva Vida
In-Person Support Online Support Support & Counseling

Mental Health Survivorship

Mental health survivorship support in the form of bilingual & bicultural psychosocial interventions to aid survivors/caregivers/families through facilitated and targeted group and individual therapy.

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Susan G. Komen
Education & Awareness Resources & Information

Metastatic Breast Cancer Facts for Life

This Facts for Life fact sheet defines metastatic breast cancer and describes types of treatment and management of fatigue and pain.

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SHARE Cancer Support
Education & Awareness Resources & Information

Metastatic Breast Cancer Online Educational Programs

Get important, up-to-date information about metastatic breast cancer from some of the world's leading oncologists, therapists, and experts.

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Theresa's Research Foundation
Conferences & Workshops Education & Awareness

Metastatic Breast Cancer Research Conference

Annual research conference focused on MBC. The mission of this research conference is to bring together a diverse audience to create a collaborative research environment with a long term goal of developing curative approaches for metastatic breast cancer patients.

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METAvivor Research and Support, Inc.
Research

Metastatic Breast Cancer Research

METAvivor funds metastatic breast cancer specific research through a peer and patient reviewed program. Since our founding in 2009, we have funded 193 grants for $23.9 million.

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Hope Scarves
Funding Research

Metastatic Breast Cancer Research

In 2015 Hope Scarves established a Metastatic Breast Cancer Research Fund. A percentage of every dollar donated to Hope Scarves goes toward research. Or, one can give directly to this fund and 100% of the donation will go toward research. To date, Hope Scarves has given $925,000 to support research and clinical trials, all matched 1:1 by anonymous donors for a $1.85 million dollar impact.

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SHARE Cancer Support
In-Person Support Online Support Support & Counseling

Metastatic Breast Cancer Support Groups

Share your thoughts and feelings in support groups, led by specially trained facilitators who have personal experience with metastatic breast cancer.

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Triple Negative Breast Cancer Foundation
Online Support Support & Counseling

Metastatic Mondays with TNBC Friends

Join our virtual meet-up on Zoom for those diagnosed with metastatic, triple negative breast cancer. Share information, treatment experiences, tips and support during this participant-led, informal discussion.

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Young Survival Coalition
Education & Awareness Resources & Information

Metastatic Navigator

A Young Adult’s Guide To Living with Metastatic Breast Cancer promotes a greater understanding of living with stage IV breast cancer. It includes various treatment options and provides advice on working with healthcare teams, along with forms and tools to help you stay organized.

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BreastCancerTrials.org
Clinical Trials Education & Awareness

Metastatic Trial Search

A streamlined clinical trial matching service designed specifically for people diagnosed with stage IV (metastatic) breast cancer.

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BreastCancerTrials.org
Clinical Trials Education & Awareness

Metastatic Trial Talk

Metastatic Trial Talk is an online newsletter designed to give people with MBC the information and research they need to understand their clinical trial options.

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Triage Cancer
Newsletters

Monthly Newsletters

Visit this space often for the latest news from Triage Cancer.

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Tigerlily Foundation
Newsletters

Monthly Newsletters

Visit this space often for the latest news from Tigerlily Foundation.

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Chrysalis Initiative
Newsletters

Monthly Newsletters

Visit this space often for the latest news from The Chrysalis Initiative.

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Breastcancer.org
Newsletters

Monthly Newsletters

Visit this space often for the latest news from Breastcancer.org.

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NOVARTIS
Education & Awareness Policy

More Than Just Words

More Than Just Words is a multiyear commitment to promote health equity in breast cancer care, where there is significant unmet need. As part of the initiative, Novartis is collaborating with leading multidisciplinary experts committed to drive health equity across the continuum of breast cancer care.

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Patient-Led Initiative
Clinical Trials Education & Awareness

Multi-Regional Clinical Trials Individual Return Result Taskforce

This is a multi-stakeholder group tasked with considering the ethics of IRR from the point of view of patients, physicians, researchers and industry partners. The deliverables will be an updated template for IRR with new information useful to all stakeholders regarding IRR in an easily adaptable form.

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CancerCare
Caregivers

My Cancer Circle

My Cancer Circle is a free simple online tool that helps organize the community of caregivers. It coordinates their efforts to more efficiently support those affected by cancer.

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Tigerlily Foundation
Education & Awareness Resources & Information

My Life is My Legacy

The My Life is My Legacy program provides education, advocacy and empowerment to young women living with MBC. Through our #MyLifeIsMyLegacy campaign, we launched a global campaign in October 2020, with 12 videos highlighting the perspectives of early-stage patients, MBC patients, caregivers, healthcare providers, researchers, family members, and a diverse community of people affected by MBC.

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Cancer Support Community
Education & Awareness Online Support Resources & Information Support & Counseling

MyLifeLine

Create your own private webpage to share your journey with friends & family and organize them to provide you practical support. Or, read and post on our MyLifeLine discussion boards to connect with other patients, caregivers, and survivors like you.

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SurvivingBreastCancer.org
Education & Awareness Newsletters

Newsletter

Each week we publish a newsletter filled with education, information and resources to empower those diagnosed with breast cancer! Be inspired, find hope, and RSVP to one of our free online programs! Subscribe today!

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Living Beyond Breast Cancer
Education & Awareness Resources & Information Webinars

ON-DEMAND CONTENT

Find answers to your unique questions about planning for treatment, managing your finances, building a community of support, and more.

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Sharsheret
Helpline Support & Counseling

One-On-One Counseling

A Sharsheret social worker provides free phone counseling sessions to women in the Embrace community through supportive conversations and a safe environment to discuss needs.

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Chrysalis Initiative
Helpline Support & Counseling

One-on-One Coaching

Chrysalis Cancer Coaching Curriculum is designed to ensure a patient’s knowledge of a comprehensive model for optimal cancer care. Our one-on-one coaching is tailored to your individual needs based on where you are in your breast cancer journey. You don’t have to do this alone.

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FORCE: Facing Our Risk of Cancer Empowered
Education & Awareness Financial Resources Online Support

Online Message Boards

Connect with peers, ask questions and share your story 24/7 in our private Facebook group or our online message board dedicated to our growing community of individuals affected by hereditary cancers. Let’s unite and support each other.

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SHARE Cancer Support
Education & Awareness Podcasts

Our MBC Life

Amplifying voices, sharing realities. This is Our MBC Life. A podcast dedicated to exploring life with metastatic breast cancer from the perspective of us, the people living with this disease and the experts who partner with us to help make our lives better. Brought to you by SHARE Cancer Support where we believe no one should face MBC alone.

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Nueva Vida
Education & Awareness

Outreach and Education

Our culturally competent outreach and education programs provide relevant and evidenced-based resources covering a variety of topics related to cancer, treatment, survivorship and end-of-life care.

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Patient Advocate Foundation
Education & Awareness Resources & Information

PAF Case Management Division

Professional case managers at PAF work with the mission to identify and reduce the challenges that individuals encounter when seeking care for their disease: allow more time to focus on medical recovery, reduce everyday stress compounded by insurance frustration and mishaps, and ensure that financial pressures do not compromise quality care.

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Patient Advocate Foundation
Financial Resources

PAF Co-Pay Relief Program

The PAF Co-Pay Relief Program, one of the self-contained divisions of PAF, provides direct financial assistance to insured patients who meet certain qualifications to help them pay for the prescriptions and/or treatments they need. This assistance helps patients afford the out-of-pocket costs for these items that their insurance companies require.

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MBC Alliance
Education & Awareness Research

PCDI

PATIENT-CENTERED DOSING INITIATIVE

Advocating for a better quality of life for people living with Metastatic Breast Cancer through Patient-Centered Dosing.

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Patient-Led Initiative
Research

PIK3CA Pathbreakers

Our mission is to improve outcomes by providing multidirectional education, raising awareness around PIK3CA as a biomarker, and accelerating translational and real world research.

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Patient-Led Initiative
Clinical Trials Education & Awareness Research

Patient Advocates In Research (PAIR)

Patient Advocates In Research (PAIR) injects patient realities into medical research and healthcare to create better research that gives people better results. We focus on the “bottom-line” of biomedical research - improving patients’ lives - by fixing problems and improving the information flow through the whole system.

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Susan G. Komen
Helpline Support & Counseling

Patient Navigation

Komen's patient navigators are here to help by empowering and guiding patients to overcome barriers to high quality, timely care. Contact the Helpline to be connected to a navigator.

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Angelmira's Center for Women with Advanced Cancer
Clinical Trials Financial Resources Support & Counseling

Patient Navigation

We help women with advanced cancer understand their disease, the opportunities for medical services (including availability of clinical trials for their specific disease) and the challenges faced. We help each woman along the journey through education, support, transportation and companionship. We also help women identify financial and other resources available to them.

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Nueva Vida
Resources & Information Support & Counseling

Patient Navigation

Nueva Vida provides access to care by patient navigation. Our navigators are trained bilingual, culturally sensitive providers who offer case management through the complex cancer care system.

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Patient-Led Initiative
Research

Patient Research Advocate for Mayo Clinic

The primary purpose of this study is to assess the anti-tumor activity of estradiol in patients with locally advanced or metastatic triple negative breast cancer (TNBC) that expresses estrogen receptor beta (ERβ) (>25% moderate or strong nuclear staining) and who have had prior receipt of taxane and anthracycline based chemotherapy.

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FORCE: Facing Our Risk of Cancer Empowered
Financial Resources Online Support Resources & Information

Peer Navigation Program

Get matched to a trained Peer Navigator volunteer who shares a similar experience and understands your situation and receive confidential 1:1 personalized support and a free expert-reviewed resource guide. Become empowered to make informed medical decisions with your doctors.

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Lilly Oncology
Research

People living with cancer are at the center of what we do

At Lilly, we are dedicated to developing and delivering innovative new medicines that will make a meaningful difference to people living with cancer. For us, this means putting an intense focus on the latest scientific advances, and collaborating with doctors, other researchers, advocates, and payers to ensure our medicines bring value to people living with cancer.

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Pfizer
Clinical Trials

Pfizer Clinical Trials

At Pfizer, we are motivated every day to develop treatments that could improve the lives of people with cancer. Clinical trials help make this progress possible by testing the safety and efficacy of potential new medicines. PfizerClinicalTrials.com offers information about clinical trials and has a tool that visitors may use to find current and upcoming Pfizer clinical trials.

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Pfizer
Financial Resources Support & Counseling

Pfizer Oncology Together

Making your patients’ support needs a priority. Together. At Pfizer Oncology Together, patient support is at the core of everything we do. We’ve gathered resources and developed tools to help patients and their loved ones throughout treatment. From helping to identify financial assistance options to connecting patients to resources for emotional support, our patients’ needs are our priority.

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SurvivingBreastCancer.org
Education & Awareness Podcasts

Podcast: Breast Cancer Conversations

Breast Cancer Conversations is a podcast where we inject positivity into the very fabric of a breast cancer diagnosis. Breast Cancer Conversations provides education, and inspiration, and offers hope. You will hear stories from those diagnosed with breast cancer, interviews with medical professionals, and thought-leadership emerging from the oncology field. Welcome to our breast cancer community!

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FORCE: Facing Our Risk of Cancer Empowered
Education & Awareness Resources & Information

Post-Mastectomy Photo Gallery

View photos submitted by members of our community to help other women who need to make decisions about mastectomy and reconstruction. Our photos show all options after mastectomy, including photos of all types of reconstruction, as well as photos of no reconstruction on REAL women.

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Twisted Pink
Education & Awareness Online Support Resources & Information Social Media Support & Counseling

Private Facebook Support Group

This group was developed to bring together breast cancer patients of all stages to support each other, provide information on research opportunities, and provide hope to metastatic breast cancer patients and others in current treatment for all stages of breast cancer. We invite cancer patients, caregivers, and oncology professionals.

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Patient-Led Initiative
In-Person Support Integrative Oncology Online Support Support & Counseling Wellness

Project Life

Project Life is a virtual wellness house for those living with metastatic breast cancer and their loved ones; a survivorship platform strictly for MBC.

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Chrysalis Initiative
Education & Awareness Training

Provider Training & Education

The Chrysalis Cancer Curriculum Training for oncology nurse navigators and medical professionals within cancer teams on a comprehensive cancer model are designed to ensure that cancer care support teams are knowledgeable about all the aspects integral to optimal cancer care including the unique needs of patients vulnerable to disparities.

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FORCE: Facing Our Risk of Cancer Empowered
Policy

Public Policy Issues

FORCE advocates for families facing hereditary cancer in areas such as access to care, research funding, insurance, and privacy.

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Tigerlily Foundation
Integrative Oncology Support & Counseling

Pure Cat

Our Pure Cat Initiative was launched in honor of Catherine Odderstol, a sassy yogi, who danced through life and who left us the gift of her eternal gypsy soul. Cat was dedicated to helping others have a mind, body, spirit approach to health and wellness. These programs include self-care such as yoga, pilates, fitness, dance classes, sound bath, meditation and prayer groups.

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Susan G. Komen
Education & Awareness Resources & Information

Questions to Ask Your Doctor: Metastatic Breast Cancer

This resource provides questions and a place to write notes to help guide a conversation with a doctor regarding metastatic breast cancer.

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Patient-Led Initiative
Clinical Trials

RECEPTOR Trial

I am designing a pragmatic randomized phase 3 clinical trial to determine the best strategy to determine the first-line treatment plan when the receptor status of a relapsed metastatic breast cancer tumor is discordant with the original primary tumor. Currently, there is no data to inform this decision. Observational data suggests this decision could impact 1-4 years of median life expectancy.

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TOUCH, The Black Breast Cancer Alliance
Clinical Trials Social Media

REPLAY: The Doctor Is In: Clinical Trials Save Lives! There is NO Sugar Pill!

Watch this replay of the Wednesday, May 26th episode of The Doctor Is In featuring a discussion of clinical trials with Ricki Fairly and Dr. Monique Gary, co-hosts, and Dr. Melissa Davis, Rev. Tammie Denyse, Stephanie Walker, and Sheila McGlown.

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Living Beyond Breast Cancer
Education & Awareness Newly Diagnosed Resources & Information

RESOURCES FOR THE NEWLY DIAGNOSED

From understanding your metastatic diagnosis and treatment options to getting practical tips and emotional support from other people living with metastatic breast cancer, LBBC has resources and information to help you take one small step at a time.

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Patient-Led Initiative
Research

Race, Culture and Clinical Trial Perception Research

For the Breast of Us and Sommer Consulting partnered on a research project to identify barriers to clinical trials for women of color and to develop actionable solutions to help patients overcome those barriers. The study uncovered four factors that impact the participation of women of color in breast cancer trials: logistics, lack of access to healthcare, fear and misunderstanding, and trust.

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Research Advocacy Network
Education & Awareness Research Training

Research Engagement

At RAN, we believe that patients and advocates can play valuable roles along the research continuum, from concept development to post-trial communications. Incorporating the patient voice in cancer research is intuitively important and has the potential to help research progress faster and further.

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MBC Alliance
Funding Research

Research Grants Analysis

Research Grants Analysis identifies gaps in research and provides insight into new drug targets or potential targets poised for development and clinical translation. This data will inform opportunities for future Alliance resource allocation priorities.

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FORCE: Facing Our Risk of Cancer Empowered
Clinical Trials Research

Research Recruitment

FORCE’s Search and Enroll Tool matches people who are affected by hereditary cancer with prevention, detection, treatment and other research studies that are enrolling people like them.

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Lobular Breast Cancer Alliance
Education & Awareness Resources & Information

Resources for Those Diagnosed with Metastatic Lobular Breast Cancer

Find information, materials, and videos that individuals with metastatic invasive lobular carcinoma (ILC) will find helpful.

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Twisted Pink
Conferences & Workshops Education & Awareness Financial Resources Resources & Information Training

Robert L Delaby Scholarship Award

One person will be selected annually to attend the American Society of Clinical Oncology (ASCO) annual meeting in Chicago, IL, as a patient advocate sponsored by Twisted Pink in Rob’s memory. The total value of the scholarship is estimated at $2500 to include registration, transportation, and lodging.

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Metastatic Breast Cancer Network
Education & Awareness Resources & Information

STANDARD TREATMENTS FOR MBC

Learn about different kinds of treatments for subtypes of MBC

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Patient-Led Initiative
Research

STORMing Cancer

STORMing Cancer is a 5-year research program to study and understand how chronic (long-term) inflammation in the body can help cancers grow. We study stromal cells, which make up tissues around your organs and tumors, to learn how to prevent or shrink cancer growth.

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Angelmira's Center for Women with Advanced Cancer
Research Resources & Information

Scientific Research

We conduct patient-centered scientific research to explore new ways to complement or improve outcomes of standard of care oncology therapies. We also collaborate with medical professionals and researchers in understanding factors that affect quality of life and survival outcomes of women with advanced cancer.

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Inflammatory Breast Cancer Research Foundation
Education & Awareness Webinars

Self-Care of Skin Metastasis

Home care management of issues and challenges associated with skin metastasis presented by a wound care professional. Speaker: Laurie Bayer, PA-C

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Hope Scarves
Support & Counseling

Sharing Scarves and Stories Supporting Those Facing MBC

Hope Scarves shares scarves and stories with those facing all types of cancer, including metastatic breast cancer. Are you in active treatment? Request a scarf for yourself regardless of hair loss. Or, share your own story, and/or scarf, and send hope to another newly diagnosed with MBC.

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Patient-Led Initiative
Education & Awareness Integrative Oncology Policy Research Wellness

Society for Integrative Oncology

The Society for Integrative Oncology is a multidisciplinary professional society dedicated to studying how to apply evidence-based integrative medicine to cancer treatment.

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Touch4Life
Online Support Support & Counseling

Soul-filling Our Sisters (SOS)

SOS is a community & platform by, for, & of BIPOC women who share an interest in mental, physical, & spiritual/social wellbeing. An interactive "safe space" that meets virtually every 4th Saturday to learn about a new topic, ask questions, & get answers - SOS features domain experts such as physicians; researchers; community, social & spiritual leaders, as well as breast cancer survivors.

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Patient-Led Initiative
Clinical Trials Education & Awareness Resources & Information

Storm Riders Network

The Storm Riders Network is a resource specifically for metastatic breast cancer (MBC) patients. The website provides scientifically accurate information about breast cancer and its treatments and distills this information into a digestible format that is easy to understand. Storm Riders also hosts a searchable clinical trial database.

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Pfizer
Education & Awareness Resources & Information

Story Half Told

Pfizer, in partnership with people living with mBC, patient advocates and healthcare professionals, undertook the Breast Cancer: A Story Half Told initiative, to tell the mBC story. A Story Half Told supports people living with mBC, addresses the lack of understanding of the disease and expands the conversation to be more inclusive of mBC by featuring the stories of those living with the disease.

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CancerCare
Caregivers

Support Groups for Caregiving

Connect with others in support groups for cancer patients, loved ones and people who have lost a loved one, led by oncology social workers. To learn more about CancerCare’s support groups, please call 800‑813‑HOPE (4673) or click on the link below.

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Patient-Led Initiative
Caregivers Education & Awareness Integrative Oncology Newly Diagnosed Support & Counseling Wellness

SurvivingBreastCancer.org

Through targeted programming SurvivingBreastCancer.org provides education, connection and support to those in the MBC Community. I lead the MBC Leadership Committee and the MBC Webinar Series.

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Susan G. Komen
Policy

Susan G. Komen's Center for Public Policy

Since our early days, we have worked to mobilize our communities to take action. Sound government action is critical for making the broad, systemic and lasting changes we need to end breast cancer forever. But we cannot do it alone. Sign up to become an Advocate and join us!

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SHARE Cancer Support
Helpline Support & Counseling

TalkMets Helpline

Through our TalkMets program, you can speak directly to a metastatic peer.Call 844.ASK.SHARE and press "6". Ask questions, find a peer, make a connection. No one should face MBC alone.

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CancerCare
Helpline Support & Counseling

Telephone Case Management

CancerCare provides free telephone case management to people living with cancer, post-treatment survivors and caregivers affected by cancer. CancerCare’s Case Management services are provided by professional oncology social workers. This service is available in English and Spanish and centers on the practical challenges that arise from cancer.

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TOUCH, The Black Breast Cancer Alliance
Resources & Information Social Media

The Doctor Is In

Our web series, The Doctor Is In, began in April 2020 to address the needs of Breast Cancer warriors, survivors and thrivers as a result of the Covid pandemic. It has now become the most viewed web series on breast cancer and the model for how BlackDoctor.org delivers content and information. The series airs live on the BlackDoctor.org Facebook page on Wednesdays at 6 PM Eastern.

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Sermonix Pharmaceuticals
Clinical Trials

The ELAINE Study

The ELAINE studies are investigating oral drug, lasofoxifene, a novel targeted endocrine agent, in women and men with locally advanced or metastatic estrogen receptor-positive/human epidermal growth factor 2-negative (ER+/HER2-) breast cancer expressing an ESR1 mutation.

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Infinite Strength
In-Person Support Support & Counseling

The HOPE Retreat

A monthly, one-day retreat in Connecticut where single mothers living with MBC and their children are provided breakfast and lunch. During breakout sessions the mom's take part in a support group and the children take part in art therapy activities. Each family goes home with a grocery card and the art projects they created that day.

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Lilly Oncology
Education & Awareness Social Media

The Impact of collaboration

More needs to be done to meet the emotional, social, physical and treatment needs of people living with MBC — but it cannot be done alone. Lilly is steadfast in its commitment and the power of collaboration to bring positive change for the MBC community.

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Patient-Led Initiative
Education & Awareness Research Training

The Johns Hopkins INSPIRE Breast Cancer Research Advocacy Program

The Influencing Science through Patient-Informed Research & Education (INSPIRE) Breast Cancer Research Advocacy Program research empowers breast cancer patients to become research advocates who can understand and inform the bench-to-bedside process. Members will serve as reviewers and advisors for scientists, researchers, and clinicians at the Johns Hopkins Women’s Malignancies Program.

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Side-Out Foundation
Education & Awareness Research Resources & Information

The Side-Out MBC Bioinformatics Portal

The Side-Out MBC Bioinformatics Portal is a novel open-access relational database developed in collaboration George Mason University. This database was created to capture a large array of information from the Side-Out sponsored studies where cutting-edge technologies are used to identify molecular alterations in individual tumors and devise personalized treatments for MBC patients.

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Side-Out Foundation
Funding Research

The Side-Out MBC Research Program

For the past 10 years, Side-Out has done groundbreaking clinical research with a focus on precision medicine for people living with metastatic breast cancer. Now that we know that precision medicine can help people living with MBC make informed decisions about their treatment solutions, the logical next step for us is to get this science in the hands of the people who need it.

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Pfizer
Education & Awareness Resources & Information

This Is Living With Cancer

This is Living With Cancer™ is a program developed by Pfizer Oncology that includes resources designed for all people living with cancer. This program is available to anyone in the United States, whether you are currently on a Pfizer treatment.

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MBC Alliance
Education & Awareness Research

Thought Leader Interviews and Survey on the Current Landscape of MBC

Thought Leader Interviews and Survey on the Current Landscape of MBC includes quantitative and qualitative research focused on recent advances in MBC research, near-term impacts, new treatments, clinical trials, new technologies, roles for advocates in MBC research, and roles for the MBCA.

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Sharsheret
Education & Awareness Research Resources & Information

Thriving Again Survivorship Kit

The Thriving Again Survivorship Kit offers resources to help you navigate your entire survivorship journey. The survivorship kit provides free customized resources and includes information on nutrition, wellness, exercise, and healthy living.

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SurvivingBreastCancer.org
Online Support Support & Counseling

Thursday Night Thrivers

If you are looking for a "come as you are", "no agenda" meetup, this is the place! We offer peer-to-peer support groups as well as professionally moderated support groups for the MBC Community.

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CancerCare
Education & Awareness Helpline Support & Counseling

Time to Screen

Time to Screen is a collaboration between the non-profits CancerCare and the Community Oncology Alliance (COA) to encourage people to take control of their health by getting recommended cancer screenings back on track. Call the Time to Screen toll-free hotline today to speak with a support specialist and learn about screening options in your area: 1-855-53-SCREEN (1-855-537-2733).

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Patient-Led Initiative
Research

Tissue Donation

As highlighted at the Metastatic Breast Cancer Research Conference 2023, people living with MBC can provide hope for other people with MBC by donating their tissue to research after they die. Tissue donation can be done by arranging a rapid autopsy in advance. The research team works with MBC patients and their families to provide support about this difficult topic and make arrangements.

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SHARE Cancer Support
Resources & Information

Toolkit for the MBC Patient

As we looked for search tools for clinical trials, we got more confused as to where we should go. We decided we needed a roadmap to help us navigate the available resources. Know of something we missed? Send us a note.

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Triage Cancer
Conferences & Workshops Education & Awareness

Triage Cancer Conferences

Triage Cancer offers a series of FREE educational conferences for individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals. This event covers key information needed to help navigate practical issues, minimize the financial burden of a cancer diagnosis, and reduce stress.

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Triage Cancer
Education & Awareness Webinars

Triage Cancer Webinar Series

Triage Cancer offers free, educational webinars on practical and legal cancer survivorship issues that impact people beyond diagnosis: navigating finances after a cancer diagnosis, health insurance, disability insurance, and more. All webinars are open to the general public, including individuals diagnosed with cancer, caregivers, advocates, and health care professionals.

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Triple Negative Breast Cancer Foundation
Helpline Support & Counseling

Triple Negative Breast Cancer Helpline

The Foundation offers free, professional support services to patients and families coping with a diagnosis of triple negative breast cancer.

The Helpline is staffed by experienced oncology social workers with specific knowledge of TNBC. In addition to counseling, TNBC Helpline staff can direct callers to other useful resources such as financial assistance grants and educational workshops.

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Unite for HER
Integrative Oncology Support & Counseling Wellness

Unite for HER Wellness Program

The Unite for HER Wellness Program provides metastatic breast cancer patients with a passport valid for $2,000 of integrative therapies and services, renewed every six months for life. All services are funded and delivered by Unite for HER and include nutritional counseling, home meal deliveries, professional counseling, Reiki, yoga, and more.

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Leslie's Week
In-Person Support Support & Counseling

VACATIONS 4STAGE4

Our vacations include 4 Programs for the family members; CIRCLE4STAGE4 for the women to network and share experiences, HANDS4GIVERS for husbands/partners to form friendships, and decrease their isolation, CLUB4KIDS Art Expression for the traumatized children; this is where they release their unspoken fears and anxieties.

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Chrysalis Initiative
Education & Awareness Resources & Information Training

Virtual Learning Modules

The Virtual Learning Modules are a learning management system with program materials, including PowerPoint presentations, handouts, and interactive participant materials for Chrysalis Cancer Curriculum.

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FORCE: Facing Our Risk of Cancer Empowered
Caregivers Online Support Resources & Information Support & Counseling

Virtual Support Meetings

Throughout the United States and in the United Kingdom, trained FORCE volunteers are hosting virtual meetings on Zoom to provide resources, information and support. Regardless of where you live, you can participate. Find a date and time that work for you. You are not alone.

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Dr. Susan Love Foundation for Breast Cancer Research
Education & Awareness Webinars

Webinars

Dr. Susan Love Foundation’s webinar series is a mission-driven program that provides a platform for notable breast cancer leaders, advocates, and experts to share valuable information in a virtual format. Through these important conversations driven by diverse perspectives, we aim to create an atmosphere of inclusion and transparency that is accessible to all.

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TOUCH, The Black Breast Cancer Alliance
Clinical Trials Education & Awareness Policy

When We Tri(al)

Black women are drastically underrepresented in clinical trials, and as a result, too many Black women are missing out on access to newly emerging and often life-extending treatments. When We Tri(al) is focused on the urgent need to end these disparities.

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FORCE: Facing Our Risk of Cancer Empowered
Education & Awareness Resources & Information

XRAY: Behind the Cancer Headlines

The XRAY program translates reports on emerging breast cancer research into language that is clear and accessible to patients. The reviews, which are published, clarify the accuracy of the media coverage and help readers evaluate the relevance of the research to their personal situation.

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AstraZeneca
Education & Awareness Resources & Information

YOUR Cancer

YOUR Cancer spotlights the many individuals and organizations at the forefront of cancer care. It brings together patients, caregivers, advocacy groups, researchers, healthcare providers, policymakers, and everyone working to transform cancer care from one person's disease into a true community effort.

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Young Survival Coalition
Online Support Social Media Support & Counseling

YSC Private Facebook Group for Metastatic/Stage IV

YSC’s Private Facebook group for metastatic young adults is a safe place to ask questions, share your experience and make connections.

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Young Survival Coalition
Online Support Social Media Support & Counseling

YSC Virtual Hangout for Metastatic Thrivers

YSC's Virtual Hangout is a space to connect with others living with metastatic breast cancer. Ask questions, share articles and talk with others who just get it. The group meets by Zoom and is facilitated by a licensed oncology social worker.

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Inflammatory Breast Cancer Research Foundation
Education & Awareness Webinars

You've Lost That Lovin' Feeling

Dealing with intimacy and sexual health issues associated with long-term treatment for metastatic breast cancer. Speaker: Don Dizon, MD

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