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I got diagnosed de novo in Feb 2024 after being told they’d caught it early. When I was scanned they found it had spread to my bones unexpectedly.

The most challenging thing for me is living with the uncertainty. I’ve been stable for 2-and-a-half years but every time I think that I can afford to plan and be hopeful a little fear flea in my ear tells me that I have an incurable disease. I am learning to ignore that more!! I don’t want it to define who I am and how I live. I worry for my children as their dad died six years ago also, but I have a good family and two sisters who are there for us. But I just carry on, as all we have is now. I just carry on living life as best I can.