Anne was diagnosed with early stage breast cancer at age 39 and with MBC 18 years thereafter. On both occasions her symptoms were misdiagnosed – an experience that subsequently transformed her into a patient advocate, researcher, and author.
Anne’s book, “The Insider’s Guide to Metastatic Breast Cancer” has been described by Mark E. Burkard MD, PhD as “a labor of love in which deep knowledge and years of experience are shared in an organized and accessible format – every drug, every breast cancer subtype, every scan, every site of disease, it’s there.”
Anne is a member of the Metastatic Breast Cancer Alliance, Komen’s Metastatic Advisory Committee, a research grant reviewer, and Project LEAD graduate. Her concerns about patients’ treatment-related side effects motivated her to establish the Patient-Centered Dosing Initiative, a movement made possible through the collaborative efforts of patient advocates and medical oncologists whose mission is to enhance quality of life, while maintaining therapy effectiveness, by enabling patients with MBC and their physicians to identify the optimal approved dosage of treatment based upon each patient’s unique physical, circumstantial, and psychological factors.
When Anne isn’t working, she’s thinking about what she’ll be working on next.
WHAT I'M WORKING ON
Patient-Centered Dosing Initiative (PCDI)
In 2020 the PCDI launched an MBC Patient Survey to which 1,221 patients responded regarding their treatment-related experiences. In 2021, the PCDI will introduce a similar survey for Medical Oncologists regarding their perspective about the prevalence and severity of MBC patients' treatment-related side effects and the strategies used for alleviating them.Link to program
The Insider's Guide to Metastatic Breast Cancer
This Guide was written by a metastatic breast cancer patient with the purpose of helping others cope with this complex and challenging illness. It is the result of five years of meticulous research and is updated whenever new therapies are approved or new scientific findings are announced. The Guide is available in paperback and eBook formats on Amazon, as well as in a complimentary .pdf.Link to program