FAQ

What is metastatic breast cancer? Metastatic breast cancer is an incurable, albeit treatable, progressive cancer that originates in the breast and then spreads to other parts of the body, such as bones, liver, lungs or brain.

What is the Metastatic Breast Cancer Alliance? The Alliance is an advocate-led coalition of advocacy groups, individuals and nonprofit organizations. While each member has a different mission, together all are committed to improving the quality of life for people living with metastatic breast cancer. Each member of the Alliance brings their own distinct area of experience related to cancer, breast cancer and metastatic breast cancer.

Why was the Metastatic Breast Cancer Alliance formed? Formed in October 2013, the Alliance sought to shine a light on, and address issues affecting the estimated 155,000 women and men living with the disease today in the U.S. and for whom treatment never ends. Their hope for longer and a better quality of life lies with advancing research specifically focused on metastasis, a greater awareness of the disease and how it differs from early stage breast cancer, understanding the extent of the disease, and stronger avenues of information and support. Read the press release here

What does the Alliance do? The Alliance coordinates its members to draw on their experience, expertise and resources to address issues identified in its 2014 report – Changing the Landscape for People Living with Metastatic Breast Cancer – including the lack of understanding of metastatic breast cancer, advancing scientific research, removing barriers to clinical trials, improving how patients are counted statistically and widening patient access to information and support services. Read more about it here.

Does the Alliance provide help to women and men who have been diagnosed with metastatic breast cancer? The Alliance does not provide financial assistance or medical advice for people living with metastatic breast cancer. Many of our members provide essential information and support services, including financial support. Some of our members fund scientific research specific to the disease. (See the list of our members’ resources here.)

How can I learn more about the work of the Alliance? Visit our website – www.mbcalliance.org, read our research report – Changing the Landscape for People Living with Metastatic Breast Cancer, and sign up here for one our virtual town halls where we report on the Alliance’s progress. Make sure you enter “Alliance Town Hall” in the subject line and “Sign me up” in the comments section

How can my organization become a member of the Alliance? Applications for membership from organizations and individuals are assessed using various criteria including a willingness to promote the work, being engages in cancer advocacy, and a commitment to working collaboratively. Here is the link to our Membership Application.

What does it cost to become a member of the Alliance? There is no financial membership fee for nonprofit members. We do ask each member to nominate at least one person from their organization to be actively involved in the work of the Alliance, usually through a Task Force.

Is the Alliance a non-profit organization? The Breast Cancer Research Foundation (BCRF), a registered 501(c)(3), is our administrative home and provides us with in-kind and financial support. The Alliance is led by an Alliance Chair, currently Marc Hurlbert, Chief Mission Officer, BCRF. Day to day activities are overseen by a Director, currently Laurie A. Campbell.

Where does the Alliance get its funding? Certain activities of the Alliance are supported by our pharmaceutical members – AstraZeneca, Celgene Corporation, Eisai, Genentech, Lilly Oncology, Novartis OncologyPfizer Oncology, Cascadian Therapeutics, Genomic Health, MacroGenics, and R-PHARM US which share the vision of the Alliance.

How can I donate money to the Alliance? The Alliance does not accept donations from the general public. If you wish to make a donation to the cause of metastatic breast cancer, please consider supporting the activities of our members (see the list of our members here).